About

 

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Welcome to my blog! My name is Norma Cruz, I’m a devoted follower of Jesus, a wife and stay at home mom to a beautiful daughter and a handsome baby boy. I also have an angel in heaven who passed away at 4 months from a rare skin disease called Epidermolysis Bullosa. I’m 24, my dreams are big and with god on my side nothing is impossible! I love Photography and spending time with my family. I love traveling and hope to do more in the future. If you have any questions feel free to email me @ norma021b@gmail.com

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Photo Nov 04, 3 21 27 PM

Ethan was born October 31st 2014 and was diagnosed with Herlitz Junctional Epidermolysis Bullosa (H-JEB)  A severe rare genetic skin blistering condition that can also affect internal organs. EB skin is as fragile as the wings of a butterfly. Even gentle skin contact causes devastating wounds. When dressings stick, the skin often comes away too. There are many forms of EB. Ethan had the most severe one. (Herlitz Junctional) Ethan passed away February 27th 2015.
There is no cure.

You can know more about Ethan’s Life HERE

 

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4 thoughts on “About

  1. Norma, I like many others don’t know you. In reading your logs and the story about Ethan breaks my heart. I as a mother, wish that I could heal your beautiful baby boy Ethan. He obviously is a strong little boy, and seems to have pretty tough parents. I hope that there is a cure to this disease because no child should bare pain and no parent should watch their child suffer. I hope and wish the best for your family. I will pray for your beautiful boy, and to find a cure.

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  2. I was brought to tears through all the pictures of your baby and his difficult struggle. I commend you for staying strong and relying on your faith through this hard time. You are your sons strength, your love and courage to persevere in these circumstances give him hope. My son was hospitalized for the first few weeks after being born, for a condition he was born with. My heart ached reading your posts because I know how painful it is to see your child sick. We have our little one home now and hes healthy. Please dont loose hope for second and fight along side your little trooper. I will join you in praying for your beautiful little angel. Just know youre not alone.

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  3. I hope your son will get better I hope they find a cure soon. Just seeing your son and hearing your story brought me to tears instantly. I hope God will cure him. God is big. I will pray for your family. You are such a strong woman and your son is lucky to have you guys. I have a son myself and i don’t know if I’d be able to go through what your going through. Your an amazing mother and I hope everything will get better for baby Ethan. Never give up and always be strong for your beautiful baby! I will pray for your family.

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